There are a number of projects out there that are focused on either thyroid advocacy, patient financial help, information to help a thyroid patient, and even support groups. I wanted to share some I think should be spotlighted if you want to learn, and/or help these causes out.
First one is a lady with Graves’ disease who is doing a documentary about her struggle with thyroid disease, chronic illness and the often corrupt medical establishment that has prevented her from getting the care she has needed at times. Maggie Hadleigh-West from her website “has been internationally recognized as an activist, independent filmmaker, public speaker and the founder of the corporation, Film Fatale. She has been writing, directing and producing in film and television since 1991.”
Check out her kickstarter campaign to find out their goals and how you can help get this film off the ground. Also here is a short…
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Interesting article from Warrior Butterfly Britney! If you have issues with your hearing you NEED to read this!
For most of my life I’ve had some issues with understanding the spoken word. I always made sure to sit in front of the class in school, and I got pretty good at lip reading. I had my hearing tested at school several times and it always came back that I had perfect hearing. You sit me in a sound proof box and send tones to me, I can hear them all day without a problem. However, you put me in a crowded or noisy environment and I may not recognize my name being spoken. I knew something was wrong, and finally a few years ago I found out what it was.
I have something called Central Auditory Processing Disorder or CAPD. In my case Adult CAPD. CAPD is basically an umbrella term for a variety of disorders that affect the way the brain processes auditory information. Put in simpler…
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Low Dose Naltrexone (LDN) and HE…an effective treatment option?
We’ve had quite the discussions on the forum lately about Low Dose Naltrexone (LDN) and if it is a viable treatment for HE. 2 people requested the “kid’s” version so they can better understand. So here’s my attempt at an explanation. Just so you know, I did do copious amounts of research and run this by my neurologist and he believes I am correct. So here we go…
LDN has 2 primary functions in the possible benefit for those suffering from HT/HE.
1. LDN works by blocking opioid receptors, (example seen in the picture 2 where it has accepted opioids into the receptors) which in turn release a bunch of endorphins. But in diseases like HE and HT that have shown no evidence of a lack of endorphins, endorphins just make you feel good. Picture 1 just kinda gives you a better view of the brain. So LDN would kinda be like a placebo effect…
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A MUST READ for the newly diagnosed
So you’ve been diagnosed with an invisible illness. Maybe you have Lupus, Crohn’s Disease, Rheumatoid Arthritis, or any other serious illness that may go unnoticed by anyone that isn’t you. No matter what disease you have, there are always people that want to give you an opinion on what you are going through. These are the five types of people you can undoubtedly expect to encounter when navigating life with an invisible illness.
1. The person that is skeptical about your disease.
Having a chronic disease will sometimes lead to cancelled plans. As the person suffering from your illness, you know exactly how hard it can be to even get out of bed. Your friends and family may not. This can be extremely frustrating. People will make statements such as, “But you were fine yesterday! You even went to the gym!”, or even, “You don’t look sick.”
Do not put…
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